My name is Gail Falconer, I am 33 years old; my Systemic Lupus Erythematosus (SLE) affects my skin, joints, tendons, blood and kidneys.

My life has changed dramatically as a result of SLE and at times I have felt the ‘why me’ attitude, but I think it is important to keep things in perspective by concentrating on what I can do.

Before lupus, I had always been physically active. In my teens I had competed at national level in cycling and afterwards continued to ride recreationally and also enjoyed running. Living on the Sunshine Coast for 12 years, I was always outdoors enjoying the sunshine – this changed in my first year of University.

Beginning in July 2007, I experienced a flare that persisted for over 18 months, resulting in several hospitalisations, copious treatments and tests. During this period of time, my hair began thinning and my skin was extremely photosensitive, I had several types of lupus rashes covering my face, neck, arms and back. I wore zinc indoors as well as a hat and long sleeve shirt. My skin began to blister under fluorescent lights, so I inevitably had to avoid places like shopping centres and did a lot of my studies via the internet as the lights at university were at times unbearable. The rash was not only unsightly, but at times it felt like a third degree burn and I would put frozen ice packs from the freezer directly on my skin to ease the sensation. I would have loved to hide away in my room until the rashes subsided, but I carried on with my life and through vanity out the window.

The usual lupus medications were sustaining my kidney function, however my health was deteriorating rapidly leaving me unable to do household chores, stand to shower or at times even walk. In September 2008 I received my first infusion of MabThera (Rituximab) and slowly my rashes faded, I was mobile again and not having to sleep for hours during the day. I was able to work part time again and partake in fundraisers to raise lupus awareness.

Throughout the past few tumultuous years, I persevered with my undergraduate degree at University maintaining above average results. I am now working full time and enjoying being an active member of society. I am always mindful of avoiding stress, too much sunlight and overdoing it in general. I am lucky to have the understanding and support of my husband, Mark, who not only accompanies me to all hospital appointments but organises fundraising events for our support group.

My advice to individuals with lupus is to be proactive and learn about your disease. Listen to your body. Always consult your doctor about your medications and dosages, ask questions and take notes during your appointments (there is always a lot to remember). Find support and talk to people who understand what you are going through. Invite your family and friends to read through the LAQ website to help them understand the disease.

You can listen to my recent interview on ABC radio on the program ‘Conversations with Richard Fidler’  by clicking on this link and pressing play below my photograph: http://www.abc.net.au/local/stories/2010/06/22/2933781.htm?site=brisbane&microsite=conversations&section=latest